I'm hoping the fairies have groceries and some firewood to last them a few days.
Thursday, February 19, 2015
Monday, February 16, 2015
A search for sledding
We have snow...and because we love thrift stores and always say "yes" when someone offers us hand-me-downs, we have boots and snow pants for everyone.
We started at the Lowe's hill, but soon realized that it was a little intense for a pink, fluffy baby.
So we found some gentler slopes out at Heritage park.
We brought Brayden and his snowboard along.
Mathew is probably not too happy about getting stuck with the pink sled.
But it's better than the saucers!! Poor Megan is wearing a coat I snagged because I knew it would fit her....in about 2 years. Sorry about that, sweetie. It's the curse of frugality. Nothing ever quite fits.
Mat's having a good time! Everly is probably wondering why she has three pairs of socks on her hands.
So cute!
Laney is my mini-me. She had very little desire to get out of the van. I can honestly say if I didn't have kids and feel the pull to provide them with magical snow day memories, I'd been inside with a book, a cup of cocoa and my space heater.
Everly is starting to agree....
Soon she was half undressed and enjoying the heated seats in the van. We let the big kids sled to their hearts content.
Oh...did I say 'big kids'? I think I am getting a glimple of who Anna is going to be. She is tough and adventurous. She wants to go back to the Lowe's hill because this sissy park is LAME-O.
Now, let's get back home and gather 'round the space heater.
Saturday, February 14, 2015
A birthday wish
It's time to turn 39.
Let there be door streamers!
Why are my door streamers on Everly and Anna's door, you ask?
I'll give you three guesses.
It might have to do with the location and quality of my sleeping habits.
Around 11 o'clock, it seemed that all birthday plans would be put on hold. Everly had caught the stomach bug. She started throwing up and when it became clear that it was the real deal, I found someone to watch Anna and started driving towards Children's Mercy.
By the time we got to the emergency room, she was really out of it. They accepted our emergency protocol letter without a problem and we were sent right back to a room. I explained that she needed a D10 glucuse IV and she needed it quick. I was so worried about how she would handle the needle, but she was so lethargic by then, she didn't even care. It was sad.
Even so, they used a j-tip on her...which I thought was amazing. It's a tool that shoots a blast of air and numbing medicine in the spot they are going to insert the IV, so that the child doesn't feel it. Very cool invention! And all the while they are working on her, there is a nurse there talking sweetly to her and blowing bubbles. I was very grateful to them for the way they help these sick little kids.
We spent the next 8 hours sitting in this ER room, reading our supply of books
Watching Frozen on repeat,
And sleeping.
They gave her a dose of Zofran and a box of bandaids to play with. Nurses get little kids.
As the day wore on, I was wondering what was going to be done with us. Would they admit us or let us go home? What if she started throwing up when the Zofran wore off? Then we'd need to come back and start over with a new IV. It seemed that no one could answer these questions. The reality of the situation was becoming clearer. MCADD just isn't something they are used to dealing with and they didn't know what to do. They were looking to me to make the decision.
That just blew my mind.
But in the end, I knew that I probably did have a better handle on what she needed than they did, so I told them to give her another dose of Zofran. It lasts for about 8 hours. Most stomach bugs run their course with 16 to 24 hours, so if we were lucky, the medicine would wear off right about the time her tummy would be settling down. They discharged us and we headed home.
I researched and spoke to the geneticist on call to determine how many calories she needed to keep down per hour to keep her body functioning. It was my mission that night to wake her up and make sure she got those calories in her. She hated that. She had had such a long day and all she wanted was to sleep. I wanted to sleep too.. but we needed to get her through the night.
What a birthday, huh?
I tell you what....the best birthday present in the world was the sight of that little girl smiling and drinking on her own the next day. That's all I need.
Well, and my Marachino Cherry cake, of course.
Let there be door streamers!
Why are my door streamers on Everly and Anna's door, you ask?
I'll give you three guesses.
It might have to do with the location and quality of my sleeping habits.
Around 11 o'clock, it seemed that all birthday plans would be put on hold. Everly had caught the stomach bug. She started throwing up and when it became clear that it was the real deal, I found someone to watch Anna and started driving towards Children's Mercy.
By the time we got to the emergency room, she was really out of it. They accepted our emergency protocol letter without a problem and we were sent right back to a room. I explained that she needed a D10 glucuse IV and she needed it quick. I was so worried about how she would handle the needle, but she was so lethargic by then, she didn't even care. It was sad.
Even so, they used a j-tip on her...which I thought was amazing. It's a tool that shoots a blast of air and numbing medicine in the spot they are going to insert the IV, so that the child doesn't feel it. Very cool invention! And all the while they are working on her, there is a nurse there talking sweetly to her and blowing bubbles. I was very grateful to them for the way they help these sick little kids.
We spent the next 8 hours sitting in this ER room, reading our supply of books
Watching Frozen on repeat,
And sleeping.
They gave her a dose of Zofran and a box of bandaids to play with. Nurses get little kids.
As the day wore on, I was wondering what was going to be done with us. Would they admit us or let us go home? What if she started throwing up when the Zofran wore off? Then we'd need to come back and start over with a new IV. It seemed that no one could answer these questions. The reality of the situation was becoming clearer. MCADD just isn't something they are used to dealing with and they didn't know what to do. They were looking to me to make the decision.
That just blew my mind.
But in the end, I knew that I probably did have a better handle on what she needed than they did, so I told them to give her another dose of Zofran. It lasts for about 8 hours. Most stomach bugs run their course with 16 to 24 hours, so if we were lucky, the medicine would wear off right about the time her tummy would be settling down. They discharged us and we headed home.
I researched and spoke to the geneticist on call to determine how many calories she needed to keep down per hour to keep her body functioning. It was my mission that night to wake her up and make sure she got those calories in her. She hated that. She had had such a long day and all she wanted was to sleep. I wanted to sleep too.. but we needed to get her through the night.
What a birthday, huh?
I tell you what....the best birthday present in the world was the sight of that little girl smiling and drinking on her own the next day. That's all I need.
Well, and my Marachino Cherry cake, of course.
Wednesday, February 11, 2015
Selfie Study
It seems to me that when you are wondering what you look like with your head tilted to the side,
or getting ready for a smooch,
or wondering if you should smile with teeth...
or without....
Mom's cell phone is the way to go.
Tuesday, February 3, 2015
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